We had originally planned on
scheduling Nina’s 2nd syndactyly release right after hub’s birthday
especially since we were having a long weekend that time, not to mention the
school semestral break. Unfortunately,
she developed a bad cold which progressed into a cough the week before the
scheduled date so we had to postpone again.
Her doctors are adamant that whenever a surgery date has been set, Nina
must be clear of any coughs or colds two weeks before the surgery date. This is mainly to ensure that no
complications would arise during the surgery since they need her nasal passages
to be clear as for the general anesthesia.
Recently, the kids had been diagnosed with Allergic Rhinitis
and Asthma (sadly both of which were inherited from me) and both of them have
been placed on maintenance medicines just to avoid any episodes particularly
during the pollen season and the wonky weather.
It was during one of those
check-ups with the ENT that the doctor pointed out that Nina had an ear
infection perhaps connected with her never-ending sniffles and the cough that
went with it that time as well.
For a person with Apert Syndrome, it is typical for the
midface portion to be hypoplastic or
underdeveloped. That being the case,
when ear infections happen, sometimes the liquid/pus in the ear is not fully
drained (because of the structure of the ear canal) and that could affect the
person’s hearing. To resolve the
problem, tubes will have to be surgically placed in the ear to allow drainage.
The doctor then requested for Nina to undergo several
hearing tests so she could determine if tubes would be necessary in her
case. Fast forward months later, we
realized that the tests were never done!
One was because hubs and I discussed that we should arrange for the test
to be covered by our HMO but because the requesting doctor was not part of the
network, we had to look for one that was.
But things started coming up and before we knew it, 5 months had already
passed. We returned to the first doctor
and sadly that the infection was still there.
So now, the tests are imperative and urgent but I am still hoping for a
miracle.
Honestly, I don’t want Nina to have to go through any more operations. I also know that the tubes in the ear can
sometimes get clogged so it’s possible that the surgery isn’t just a one-time
thing. So while I’m scheduling
appointments with an accredited doctor, I am also praying that the infection
dies down and that the doctors will see that there really is no need for tubes
to be placed in her ears. Will you join
me in praying for that please?
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